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NOCD iOS, Android, web

One of the largest OCD communities

NOCD’s community is a free, open social platform where people with OCD can talk about their fears, including the taboo ones, without being censored. It works like social media rather than a support group, with a feed, search, reactions and replies, and it’s moderated around obsessive behaviors as well.

Context

How do you build a community for people with OCD? Shame and taboo are a large part of why OCD is so hard to diagnose: most people never say their most distressing thoughts out loud, not even to a doctor. Reassurance-seeking is also a compulsion. It brings real relief, and that relief is what keeps OCD going. A community that responds to every post with comfort risks feeding the exact behavior treatment is trying to break.

Elizabeth0222 posts “Just venting”: she has lived with OCD since her early twenties, became a caregiver and single parent overnight, is afraid of losing her mind, and wants to start ERP. JPLonghorn34, an OCD Conqueror, replies: glad she is taking steps to get help, ERP has helped them, and being kind to yourself is the simplest place to start. The NOCD Community AI assistant, in beta, replies offering to share some resources that might help. Elizabeth0222 replies to the assistant: yes please.
Real threads from the community.

Role

I've been the lead designer for NOCD's community for the past four years, which in practice means acting more like a product owner than a single-feature designer: I hold the long-term vision for the member experience. I own the UX and customer experience strategy across teams, working directly with clinical leadership, marketing, and our CEO to get buy-in on direction, then carrying that through into the UI, interaction design, and discovery work for every new feature we ship.

Since I took this on, a few things have changed significantly. Here's what, and why.

  1. The community feed in 2026, scrolled down: the search bar stays pinned at the top with a New post button beside it.

    2026

    Search and New post stay in reach as you scroll. Feeds are down to three: everyone, therapy members, and your own. Prompts still greet you first.

  2. The 2024 feed: a search bar on top, feed tabs including From therapists, and a therapist reply to a member's post.

    2024

    Thematic feeds, plus a short test of therapists taking part, open to therapy members only. We tried several ways of splitting the feed to see which ones people used.

  3. The 2023 feed: a greeting, a rotating prompt reading Something that's helped you, and posts with reactions and a Hopeful button.

    2023

    Reactions arrive, so showing up for someone takes a tap instead of a full reply.

  4. The 2022 feed: a row of story circles across the top, with Share something tucked under the Discussion heading.

    2022

    We started with a stories row and the first randomized prompts. By the end of the year the stories were gone and the feed ran full width, with Share something at the top.

The community feed, newest first.

The decisions

A community that responds to every post with comfort risks feeding the exact behavior treatment is trying to break.

Search before you post

The community began as a place to get something off your chest, often for the first time. That still matters. But the feed asked people to write before it helped them read, and search was easy to miss. Someone going through exactly what you were could be one search away, and you would never find their thread. Many posts went unanswered, and people ended up talking to themselves.

Then Google's rules changed and AI began reshaping how people find content. We wanted our conversations to be findable without chasing engagement for its own sake, and a post needed at least three replies to count.

So search became a permanent, prominent part of the feed, and New post stayed one tap away. The prompts are still the first thing you see.

2026, scrolled down: the search bar stays pinned at the top with a New post button beside it.
2023, scrolled down: only Create a new post stays pinned, and search shrinks to a small icon.
On scroll down, 2023 and now. Search used to shrink to an icon; now it stays pinned with New post beside it. Drag to compare.

Support without reassurance

Given how sensitive the themes are, a like button was never enough. Liking a post about a distressing intrusive thought feels wrong, and liking, posting or replying were the only ways to take part, which kept the bar too high. So we expanded the reactions.

Getting the set right took several rounds. The first included laughing. Soon after launch, members started posting that they felt bad when a post that was never meant to be funny got a laugh, so we took it out and sadness took its place. Later we redrew the set. Most posts aren't something to like or heart, so Support became the default. It says "I'm here" without judgment.

2026: Support as the default reaction.
View earlier versions
  1. 2023, shortly after

    The revised set: heart, check, sun, a sad face and a worried face.

    Laughing out, sadness in.

  2. 2023

    The first reaction set: heart, check, sun, a laughing face and a worried face.

    The first set, with laughing.

Usernames don't have to connect to who you are, so people share things here they wouldn't anywhere else. Some of those posts ask for reassurance or show suicidal intent. Members can flag them, and our moderation system flags them too. Resources reach the author's account immediately, and a human reviews the post and replies.

Recovery stories

Posts from members further along in treatment get more visibility, so someone early on can see that recovery is possible without the platform saying so. When a member chooses to share a Conqueror milestone, the post carries a badge, so it reads at a glance as a credible, hopeful example rather than platform messaging. Learn more about NOCD’s Conqueror program

Conqueror posts, each marked with the milestone banner.

What I chose not to build

No downvotes and no public leaderboards. The recognition program is capped and open only to members who already understand their own OCD, so it can't become a gamification trap. I also chose not to build friction for engagement's sake. The goal is real conversation between people who understand each other, and that same conversation is what feeds the community's organic reach.

Outcome

Search had the biggest measurable impact. We set our own rule that a post needed three or more replies before it could be indexed by search engines. After search became part of the feed, the number of posts that met that bar grew by 10%, without reducing the number of new posts, so engagement went up. I also helped set up the indexing behind it: in the first two years after that change, we indexed around 34,000 posts.

The Conqueror program has had a significant, lasting impact on therapist retention, clinical outcomes, and new members.

34k
community posts indexed in the first two years after the switch to search
10%
more posts reaching three or more replies, with no drop in new posts